With such a small patient population, Medical Affairs groups within Rare Disease organizations often find it difficult to establish meaningful connections. Leading trailblazers are recognizing the tremendous potential of social media in reaching the right people and getting them the information they need.
However, to effectively engage with stakeholders through social media, Medical Affairs leaders must seamlessly integrate social media with other channels, identify the optimal structure and activities, craft the right mix of content, and track the impact of their efforts using key performance indicators.
Best Practices, LLC conducted benchmarking research to develop a roadmap for Medical Affairs’ social media success in Rare Disease segment. The report explores current trends and success factors in harnessing the power of social media to effectively educate the rare disease market. It delivers benchmarks around the structure, activities, content sharing policies, stakeholder collaborations, content review committees, omnichannel integration, and key performance indicators.